Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure

Development and psychometric testing of the patient-reported measure of activity performance of the hand (MAP-Hand) in rheumatoid arthritis.

OBJECTIVE To develop and assess the reliability and validity of a patient-reported measure of hand activity performance for persons with rheumatoid arthritis (MAP-Hand). METHODS The development of the measure included a literature review, semi-structured interviews with 60 patients with rheumatoid arthritis, and testing of face and content validity by video-observation and classification of t...

Chertsey Outcome Score for Trauma: Development and validation of a new unifying patient reported outcome measure for orthopaedic trauma

PURPOSE Lately there is an increasing tendency of using Patient Reported Outcome Measures (PROMs) as a final indicator of the outcome of many surgical treatments in orthopaedics and in other medical specialties. Currently there are many outcome scores in orthopaedics and most of them are site specific. In the contrary there is a lack of trauma specific outcome scores. METHODS We have designed...

The Use of patient Reported Outcome Measures for Rheumatoid Arthritis in Japan: A Systematic Literature Review

BACKGROUND Patient-reported outcomes (PRO) obtained through routine medical care may identify patients' day-to-day burden and help tackle the disease from the patients' perspective. However, there is a paucity of information regarding the availability of PRO data and PRO tools for rheumatoid arthritis (RA) in Japan. OBJECTIVE We reviewed the literature on PRO data availability and to identify...

Patient-reported remission in rheumatoid arthritis.

Patient perspective: fatigue as a recommended patient centered outcome measure in rheumatoid arthritis.

The Patient Perspective Workshop at OMERACT 8 considered evidence for the importance of fatigue to patients with rheumatoid arthritis (RA) and whether measurement of fatigue meets the requirements of the OMERACT filter. The workshop participants included 20 patients from 10 countries and 60 other OMERACT participants. Introductory papers and detailed notes for discussion group members set out t...